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Jenny Chambers from the United Kingdom is the founder of the OC Support website www.ocsupport.org.uk below is information about her efforts with the awareness of OC, her research involvement and donation information.
“I began by setting up the Helpline and lobbying baby magazines to feature the condition. Gradually women began contacting me. In 1997 I met Dr Catherine Williamson who runs a research group that works on OC at Imperial College London. By this time I was driven to understand the causes of the condition and was keen to help with the research. Dr Williamson obtained ethical approval for me to help with recruitment for the research through the Support Group, and I am delighted to have been able to generate considerable interest in the study from women with OC. The team at Imperial College has now raised money to pay me for my efforts and I am proud to be working as part of the research group. As I am also a trained counselor, I hope to expand my involvement in research by focusing on the psychological needs of women with high-risk pregnancies. I am indebted to Dr Williamson for her support and guidance over the past years.”
“As with all research, donations are invaluable. At the moment I have not set up OC Support as a charity (although this may change). I am very grateful therefore to the Institute of Obstetrics & Gynaecology Trust (link to go here) (charity number 292518) who administer the OC funds and have permitted me to use the charity number for fundraising purposes.”
“I believe it is important you know that, as I work in the London Group, some of the money you donate may be used to fund my salary for the research work I am involved in (i.e. recruitment of families, taking blood samples, work in the lab. The OC Support website is something that I do voluntarily and are not funded in this way.”
If you wish to make a donation you can do so via the IOGT website. Once you have accessed their page you click on 'donations' and then on 'area of research you would like to support' you will then be able to select obstetric cholestasis as the research you wish to donate to. Don't forget you can also complete a standing order to donate on a regular basis to OC which is a fabulous way of keeping the research going! Click here to donate. If you want to know more review the website www.ocsupport.org.uk and follow the links if you wish to make a donation.
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